Media
Curing the Incurable
By Jonathan Weiner
Can AI Keep You Healthy?
By David Ewing Duncan
ALS Study Shows Social Media's Value as Research Tool
By Amy Dockser Marcus
Practicing Patients
By Thomas Goetz
My No-Soap, No-Shampoo, Bacteria-Rich Hygiene Experiment
By Julia Scott
Saving Stephen Heywood
Charlie Rose
His Brothers Keeper Written by Pulitzer Prize-winner Jonathan Weiner, His Brother’s Keeper: A Story from the Edge of Medicine tells the story of Stephen Heywood’s ALS diagnosis and Jamie’s race to find a cure. The book explores their family’s journey through uncharted medical terrain—gene therapy, stem cells, and the rise of biotech—while raising profound questions about ethics, hope, and the future of medicine.
So Much So Fast An award-winning documentary and official Sundance selection, So Much So Fast follows the extraordinary chain of events after Stephen Heywood is diagnosed with ALS. In response, his brother Jamie launches a relentless effort to save him, founding one of the world’s first nonprofit biotech labs, the ALS Therapy Development Institute. Directed by Oscar-nominated filmmakers Steven Ascher and Jeanne Jordan, the film captures five pivotal years of love, urgency, and outsider science, revealing a deeply human story of innovation under pressure.
